for participants picture

Frequently Asked Questions

Who can sign up?

You can register for REACH if you live in the UK and have asthma. If you care for someone with asthma who is unable to register (for example, a child under 16), you can register for them. 

If you have any questions about whether you are able to register yourself or the person you care for, get in touch with the REACH team.

Is my personal information safe?

We make every effort to ensure your data is kept safe. Any information we collect from you will be kept confidential and stored in a highly secure server at the University of Edinburgh. Only authorised staff on the REACH team, who have completed the appropriate data security and data governance trainings, will have access to this database. Details of your specific diagnosis as well as personal information you share (name, age, address, gender) will be stored on the database, hosted by the University of Edinburgh. This information is required to enable us to match you with asthma research studies. If we publish any research or other documents based on information from the database, this will not identify you by name. 

Why am I being asked to provide certain information?

Providing information such as your age, gender and address, as well as information about your asthma, helps us to better match you with studies that you are able to participate in.

Who can access my information?

Only members of the REACH team given specific permission by the University of Edinburgh will be allowed to look at this information.

Do I have to participate in research studies?

No. You will be notified of research studies that you qualify for but it is up to you to contact the researcher to enrol or get more information unless you give additional permission for researchers to directly contact you.

How often will I be notified of research studies?

This depends on the number of studies being conducted that are recruiting people of your age, sex, gender, and severity of asthma.

What kinds of research studies are there?

Research studies vary and can range from answering a questionnaire to testing activities with mobile applications. Sometimes studies compensate you for your time. 

What benefits will someone receive from participating in a registry?

Registering with REACH is likely to increase what we know about asthma, help health care professionals improve treatment for asthma, and allow researchers to design better studies, including development and testing of new treatments. Being part of REACH can help people interested in participating in research connect with asthma researchers. However, individuals (and their families) who choose to participate in a registry should understand that participation will not guarantee a treatment or cure for asthma or that they will be eligible to join a study.

​​​​Can a participant withdraw from the registry?

Yes. REACH is voluntary; there is no penalty for choosing to withdraw at any point.

Who should the participant contact with additional questions or concerns?

If you have a question, please contact the REACH team.

How is a register different from a clinical trial?

The REACH register collects information voluntarily from people who are affected by asthma and are interested in participating in asthma research studies. A clinical trial is the study of new ways to prevent, detect or treat diseases or conditions. Volunteering for REACH does not mean a person has signed up for a clinical trial. Participation in REACH can be a first step toward participation in a clinical trial, but REACH and specific trials are not directly linked.

Click here to learn more about how your information will be protected

 

for participants picture

© 2015 AUKCAR