UK born South Asians have distinct asthma experiences compared to other ethnicities including poorer asthma outcomes, higher hospital admissions, risk of re-hospitalisation and higher death rates.
One important approach in addressing this inequality is to identify and implement culturally relevant and effective asthma self-management interventions, which is explicitly recommended in asthma clinical guidelines. Yet, implementation of self-management in routine clinical care is typically poor.
Using the East London South Asian population as an exemplar, the project aims to explore how culturally relevant asthma self-management interventions need to be tailored, developed and tested for the South Asian population.
Part of the study involves us talking to South Asians in East London, to find out more about how they manage their own asthma. We are currently looking for people to take part in these interviews.
Younger South Asians who are born in the UK have various cultural differences (e.g. English speaking ability, better education and employment then the first generation who migrated to the UK). Yet, they still find it difficult to manage their own asthma suggesting:
For the qualitative study (phase 1) we propose to:
Participants who cannot read, write or speak in English will be given a translated audio recorded patient information sheet and a recorded verbal consent will be taken.
For the intervention development study (phase 2), we aim to design, develop and refine a prototype culturally tailored asthma self-management intervention for UK born South Asians, using findings from the qualitative study, with a working group of up to 10 South Asians (5 Bangladeshi and 5 Pakistani) and up to 6 relevant healthcare professionals using structured feedback questions.
All participants will be recruited using a purposeful sampling from mixed settings. Data will be analysed using thematic analysis.
Are you interested in participating in the interviews for the qualitative study and/or the intervention development study?
Please read the patient information sheet and fill in the Expression of interest form, below. Email the form to the principal researcher, Salina Ahmed firstname.lastname@example.org
Oct 2014 - tbc
The project compromises of 4 stages as detailed below:
Whilst the following is the proposed outline for study 3 and 4, as the project progresses these will be refined through various stages of research:
A specified output will be a culturally tailored asthma intervention for the South Asian community. More widely research will inform the generic process of developing culturally relevant interventions for other chronic illness and healthcare services.