Project: My Asthma Story

My Asthma Story

Our Aim

The “My Asthma Story” study aims to find new ways to help people with asthma.

We know that people living with asthma or who care for someone with asthma often have good ideas and practical ways to try to keep asthma under control and avoid asthma attacks – as researchers, we would like to hear these ideas!

What are we doing?

The “My Asthma Story” project was created as a way for researchers to hear directly from people affected by asthma so that they can better understand what may help others.

The ideas we hear about from patients and families will influence our research on new strategies for preventing asthma attacks and help to develop ways of helping others with asthma.

You know best!

We are asking people to share their asthma stories with us. A ‘My Asthma Story’ is a 1 minute video telling us about the ways you have learned to manage your asthma and prevent having asthma attacks – or a strategy that you may have developed to help someone else with asthma. You can also choose to complete an on-line questionnaire anonymously or post comments on our Facebook page.

Everything you tell us is useful. You may think we’ve heard it all before or your tips are so small as to not benefit anyone else. They are not! The more you tell us the more help we can pass on to everyone.

Online questionnaire

Visit our MyAsthmaStory Facebook page

Study website

Key People

Aziz Sheikh Headshot
Aziz Sheikh
Centre Director, Lead: Asthma Observatory, Co-lead: Database of Research Volunteers
Melissa
Melissa Goodbourn
Research Fellow, PPI Platform
Allison Worth Headshot
Allison Worth
Lead: Patient and Public Involvement Forum
Lynn Morrice Headshot
Lynn Morrice
Centre Manager

Timeline

April 2014 – March 2017

Contact

MyAsthmaStory@ed.ac.uk

Download information leaflet

Participant Information Leaflet PDF

Funding

Asthma UK / Centre for Population Health Sciences, University of Edinburgh

© 2015 AUKCAR